Together,
We Make Hope Happen

We raise awareness and funds for Spinal Muscular Atrophy (SMA) to make a lasting difference in young lives.
About Us

Who We Are

Zandrability is a family-run nonprofit organization led by the inspiring Alexandra Genovese. Alexandra’s journey is remarkable; she has battled Spinal Muscular Atrophy (SMA) since birth is a Hofstra University communications graduate, a Brooklyn Law School alum, and a practicing attorney in the local community. At 28 years old, Alexandra lives at home with their parents and relies on a network of caregivers for her day-to-day activities and functions. Her dedication and resilience is truly the driving force behind Zandrability’s mission to raise awareness and funds for SMA, significantly impacting the lives of children and families affected by this condition on Long Island, NY.

Our Mission

To provide assistance and guidance to the local, young, physically disabled community while raising awareness for Spinal Muscular Atrophy (SMA).
To provide assistance and guidance to the local, young, physically disabled community while raising awareness for Spinal Muscular Atrophy (SMA).
Who-We-Are

How We Help

By supporting Zandrability, you can make a tangible difference in the lives of children with SMA on Long Island. Your involvement helps support crucial research, provide essential equipment, and spread awareness about this condition. Together, we can create a brighter future for these incredible individuals and their families.

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Fundraising

Your support powers research, treatment, and care for children with SMA. From charity runs to benefit concerts, 100% of event proceeds fund medical equipment, care, and innovative research.

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Raising Awareness

We challenge perceptions through campaigns, workshops, and real stories of resilience. By educating the public, we promote inclusion and celebrate the potential of those with SMA.
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Community Engagement

Zandrability brings families together through events, support groups, and mentorship. We also advocate locally to ensure young people with physical disabilities are heard, supported, and included.

Our Impact at a Glance

$50,000+

Raised for CureSMA since 2020

13

Organizations supported— and growing

12

Years of Creating Impact

100%

Volunteer-Driven Organization

Our Community

Feeding NYC
Take me out to the ball game
Full Force Splash
Cure SMA
Our Testimonials and Success Stories

Stories that Inspire

Meet the people whose lives you’ve touched through your generosity and support.

Upcoming Event

Jun
22

1st Annual Summer Soulstice Soiree

7:00 pm - 10:00 pm Landrum Pavillion, 103 N Randolph Ave
View Details
Jun
22

12th Annual Mistletoe Jam

7:00 pm - 10:00 pm Landrum Pavillion, 103 N Randolph Ave
View Details

Ways to Get Involved

Whether you give your time, resources, or voice, there’s a way for everyone to help make a difference.

Donate

Your contribution powers our mission.

Volunteer

Join our team and help make events possible.

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