What We Do

At Zandrability, we’re dedicated to creating meaningful change for young people with physical disabilities while raising awareness and funds for Spinal Muscular Atrophy (SMA). Through dynamic community events, strategic fundraising efforts, and direct support initiatives, we foster inclusion, spread awareness, and contribute to critical research and support networks. Our work is rooted in compassion, driven by community, and focused on impact.

What is SMA?

Spinal Muscular Atrophy (SMA) is a genetic disorder that affects the motor nerve cells in the spinal cord, leading to muscle wasting and weakness. It is a rare condition, with approximately 1 in 11,000 babies born with SMA, and about 1 in 50 people being carriers of the disease-causing gene. In the United States alone, around 10,000 to 25,000 children and adults are estimated to be living with SMA. The condition is categorized into four types based on the age of onset and severity of symptoms, with Type I being the most severe and Type IV the mildest. SMA significantly impacts the quality of life, making everyday activities a challenge for those affected. However, with advances in research and treatment, there is hope for better outcomes and improved quality of life for individuals with SMA.

How We Help

By supporting Zandrability, you can make a tangible difference in the lives of children with SMA on Long Island. Your involvement helps support crucial research, provide essential equipment, and spread awareness about this condition. Together, we can create a brighter future for these incredible individuals and their families.

Fundraising

Your support powers research, treatment, and care for children with SMA. From charity runs to benefit concerts, 100% of event proceeds fund medical equipment, care, and innovative research.

Raising Awareness

We challenge perceptions through campaigns, workshops, and real stories of resilience. By educating the public, we promote inclusion and celebrate the potential of those with SMA.

Community Engagement

Zandrability brings families together through events, support groups, and mentorship. We also advocate locally to ensure young people with physical disabilities are heard, supported, and included.

Ways to Get Involved

Whether you give your time, resources, or voice, there’s a way for everyone to help make a difference.

Donate

Your contribution powers our mission.

Volunteer

Join our team and help make events possible.